Storytelling Matters

The Live Art and the Power of Words

Archive for the tag “children and rare disease”

Blogging from A to Z April Challenge

Blogging A to Z

Hey, I’m doing something neat next month! A group of bloggers (nearly 1500 as I write this post) will blog every day in April, except Sundays. Starting on April 1 with the letter A and going forward to the end of the month with the letter Z at the end of April 30, bloggers will write daily posts on the same letter. Over the month it will be like savoring alphabet soup, one noodle at a time. People say it is great fun, so I’m raring to go.

You can read more about it here.

Many bloggers who do this challenge orient their blogs to a theme. And today is the big Theme Reveal.

My theme is Reimagining Beauty.

One of the most beautiful children I have ever seen is a little girl. She was born with a genetic syndrome that among other things, alters the way she looks. It got me to thinking about the images of beauty that she will encounter in her life. Will she feel excluded? My recent blog posts have touched on this and other related issues, and there are more to come.

But when the A to Z Challenge came my way, I thought that it would be great opportunity to really dig down into this issue. So I decided to focus on how anyone – storytellers, writers, people in everyday conversation, parents – anyone has the power to describe beauty inclusively, regardless of cultural background, body type, age, abilities, or what their physical appearance has or “lacks” in terms of media driven imagery. Because that stuff is not what matters or makes one beautiful. At least that’s my take on it.

Storytellers know that words have great power to change mood and mind. My blog series on Reimagining Beauty will focus on the words we can choose to redefine and reimagine beauty in ways that are inclusive of anyone.

It will be one fun roller-coaster ride through the month of April.

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Copyright 2014 The Storycrafters All rights reserved

Conquering the Ugliness in Beauty

Social media is buzzing about how distorted images of women create unnatural, unattainable representations of ‘beauty.’ And this reminds me of an important, related issue.

A friend recently told me that as a kid, he hated reading certain stories because they were about characters he could never be like or look like. My friend has a disability. Whenever he read about beautiful people in books, he felt awful about himself.

There can be great ugliness in beauty.

A mom I know struggles with teaching her kids about beauty, wishing for more stories that reflect her kids’ Asian heritage. And then there is my friend whose daughter has a rare, genetic syndrome. In addition to having a unique appearance, the child uses a wheelchair. There aren’t many beloved story characters who conquer kingdoms in assisted devices or who have asymmetrical body shapes. Finding stories that don’t marginalize such children can be more challenging than conquering storybook kingdoms.

My friends are not alone. Many parents wrestle with this. We comb bookshelves to find stories with illustrations that depict beauty in ways we feel are appropriate for our children. But many of those images are picture book perfect or culturally biased; they don’t reflect our reality. So images in books can become subliminal, insidious reminders of how we “should” look. Most of us fail.

Because pictures send a thousand messages, some parents carefully screen the images their kids see. They don’t want their children receiving messages that might cause them to undervalue their own unique beauty, heritage, or gifts. They don’t want their kids to feel like they don’t measure up. They don’t want to teach them to aspire to impossible ideals.

There can be great ugliness in beauty.

Rigorous screening of media is one way to offer images of beauty to kids. But you can also do something else to give children stories and images that reflect them and which can build self-esteem.

Tell them stories.

When stories are told, words are chosen by the storyteller. Pictures are imagined by the storyteller and the listener(s). Thus, beauty is in the imagination of the beholder.

You can make up a story, adapt a traditional one, or retell one from a book. In so doing, you can define beauty in all the ways that make sense to you. A beautiful character can be from any culture, can have any disability, can mirror any child. Listeners can imagine themselves riding wheelchairs to glory.

Best of all, the potent images from a child’s imagination can stay with a child for life.

Beauty does not equate to blond hair, white skin, two straight arms, a certain weight range or a particular ability. Beauty is not just appearance alone. Beauty can be described in all the ways that humans perceive it. Most importantly, when you tell a story, your beautiful characters can have the beautiful traits that your child possesses.

Inspire children to find themselves beautiful. Inspire “typical” children to see beauty in those who have disabilities. Tell them stories.

The little girl I mentioned earlier, the one with the genetic syndrome, is one of the most beautiful children I have ever met. Not because she looks like everyone else, but because she looks like herself. Her heart popping smile is riveting, her glance has the power to light up the dark. I fall over myself when she smiles at me because her infectious, gorgeous glance kisses my heart. She radiates pure joy. What is more beautiful than that?

Every person deserves the chance to feel beautiful. Reclaim beauty for yourself and for the children around you. Beauty does not have to call up the beast of failed hopes; when stories are told personally, when beauty is described consciously, then stories become more beautiful. And that is when they can bring joy, possibility, and peace to parents and children.

Beauty does not have to be ugly.

Copyright 2014 The Storycrafters All rights reserved

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In an upcoming post – soon I hope – will outline ways to describe beauty in inclusive ways in the stories you tell. Follow for more on this and other stuff.

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